We have been a busy family these last several days! Paul had a visit from Santa, got to meet his Mom-Mom and Uncle Mark for the first time, and had good moments and bad moments in terms of his recovery. Paul had a lot of visitors coming and going for several days and was also on a bit of a roller coaster. He was working very hard to breathe for quite a while, had loose stools, and high heart rates. The team thought he might be going through with drawls from early surgery medications, or have a paralyzed diaphragm, or have another lung collapse, or have a virus, or diaper rash, or maybe hospital psychosis… After ruling all of these things out- not completely but for now- we think that Paul has pleural pulmonary effusion. This is where water gets between the plural space in the lungs. It is easy to treat with diuretics and a what is called a pigtail chest tube. He got the chest tube last night and this morning things seem to be a lot better with breathing.
This is the typical course of Norwood/ HLHS babies- there is NO typical course. It is a rollercoaster of ups and downs. We don’t know if the chest tube is the answer or if something else will pop up and be a better answer or a different problem. We never really know exactly what is wrong and how to treat it. What we do know is that we all love each other, we believe that God is going to pull us through al of this, and we are privileged to be Paul’s parents
We will continue to update everyone on his progress our little one is fighting through it! Thank you for continuing to support, pray for, and care about our little family.