No CF- What Next!
We learned today that Paul does NOT have Cystic Fibrosis! This is a wonderful news and a testament to how faith and prayer work. We are so thankful to God and all of you for praying for Paul. I am not sure I have ever really believed in prayer with my whole heart until now.
This brings us to- what next? Why would he have low elastase? The answer is- we are not sure. We are currently working with the gastrointestinal team to figure that out. Please pray that whatever this is is not a huge issue.
The whole world of HLHS is ruling out issues and asking more questions- we are always uncertain about most things. What I do know is that I feel blessed to be on this earth with my little family and there is no where else I would rather be. I appreciate each of you going on this roller coaster ride with us. We are humbled by His grace and your presence in our lives.