We are thrilled to be home but also have to be hyper aware of the fact that Paul is still extremely fragile. Norwood babies (between 1st and second surgery) are almost flammable- things can turn from bad to worse to life threatening in a matter of minutes. Between these two stages Paul is at the greatest risk for mortality and morbidity. One of the worst things that can happen is an infection. Even a small cold can send these kids over the edge. Our homecoming is, therefore, bittersweet. We can not leave the house with Paul accept for doctors appointments and emergencies. While we love visitors there are several precautions we must take in order to allow folks into our home. The following list was compiled by us and the nurses at VCH. If you plan on visiting please make sure you:
1. Have had a flu shot
2. Have not been sick in the last 72 hours
3. Have not been around someone sick in the last 72 hours
4. If you have been sick, you must have been completely symptom free for the last 72 hours (this also applies to anyone you have been around)
5. If you have or work with children or in a hospital environment, you must change your clothes immediately as you walk in the door
6. No children under the age of 15 should come over at all with the exception of children with CHD that are not around other children on a regular basis
7. Wash your hands before touching Paul
8. Sanitize your hands the moment you walk in the door (we have a sanitizing station set up beside the front door)
9. Wear a mask if you choose- to be extra careful
10. Understand that we are being so strict because this is Paul’s life at stake, not because we do not love and appreciate all of you and your support.
11. Realize that after the second surgery things will relax a lot and we will welcome your visits and snuggles with Paul!
12. Call/ text ahead of time to make sure we are available as one of us has to walk outside to let you in
In general, if you are even the slightest bit worried about any of the above, error on the side of caution! The nurses at the hospital said this is the toughest time for people in general because it seems like a regular new born homecoming; but it is not we are simply transitioning from the hospital to a sterile environment at home until after the second surgery.
We will keep you posted as things progress and really appreciate all of your positive thoughts and prayers. Please keep praying that Paul pulls through all of this with flying colors. God bless and keep each of you.