Next Steps, A Little Scare, and Prayer Requests
The cardiac catheterization went very well. The doctors were able to see everything they needed and are happy with heart function, size, and blood flow. They did find one collateral vessel off of the innominate vein that needed to be coiled off. Collateral vessels happen when the body is not well profused and, so, in HLHS kids they are really common from what we understand. Other than that, things looked good and the cath lab Docs are recommending Paul for the Glenn within the next few weeks at their conference with all of cardiology this Thursday. We will know when they plan to schedule the Glenn by this Friday.
In other not so good news, the cath really took it out of Paul. He spent the night in the ICU and was working very hard to breathe. It was terrifying and took me back to his first days post-Norwood. Then, he started ‘de-satting’ meaning that his blood oxygen saturations got way down. He was satting in the 60s and 50s and had to be put on high pressure oxygen called vapotherm and continued to need oxygen throughout the night. This was REALLY hard for us to see as he normally has saturations in the low 90s and has not needed vapotherm since we were last in the ICU. He was in pain and really having a tough time and getting very upset a lot. We felt for a little bit like- “Oh no…we are right back where we started” And then about 24 hours later…he started to get better and little by little is getting to be more like himself everyday. As I write this we are now on the cardiac step down unit (the floor) and will likely be here for a while. Since the cath Paul has had blood in his stool, then no blood, fever, then no fever, increased lactate levels, then decreased levels, and continues to work really hard to breathe. The doctors think he is still recovering from the cath and may be a little fluid overloaded from the IV fluids he got during the procedure. They are continuing to spot dose lasix and monitor the “wetness” of his lungs closely. We are likely going to be here for a little while longer.
We so appreciate your prayers- especially our family, phamily, and of course the Dowdles who were able to say “we’ve been there” on the day of. We were really not prepared for the cath not to go really smoothly. It was scary and reminded us of how sick Paul really is. Please continue to pray that Paul recovers nicely and stays well until his next surgery and keep praying for him as we all need God ‘s grace through this.
Many of you have asked how you can help. If you are interested in supporting us, a meal and prayer is the BEST way to do this. Our meal train is http://www.mealtrain.com/?id=mntg8dja5vgt.