Update- echo and chest tube etc.
The results of our echo are okay. Function has improved slightly but it is still mildly- moderately depressed. We are not, however, starting digoxin yet. Paul is having trouble maintaining fluid balance and digoxin can mess with electrolytes so its off the table for a while. In fact, the fluid balance has become a major concern over the last 48 hours. He should be able to diurese (pee off) fluid that builds up in his body without serious intervention. He has not been able to do this, even with IV lasix and dieuril. We, therefore, got an ultrasound yesterday to see where fluid had built up if at all and to make sure his vascular system was not clotting. We learned that Paul has a moderate sized effusion of fluid in his right side. In order to pull this off, we are getting a chest tube put back in today. This is a struggle he had about 2 weeks post-Norwood as well. We also think he may be contending with pesky new collateral vessels (he had one coiled off during the cath) and so we may go back into the cath lab to take a closer look at what is going on. So, we are here for a while- slow and steady wins the race though and he is still fighting! He just needs more time to recover. I am worried and sad and angry and hopeful all at the same time. I want him to be alive and to thrive. How strange is that?- you think you would wish for your children to be good babies or sleep through the night or be nice to other kids or good at spelling but really all I wish for Paul is life- the most basic thing- for him to live and breathe and love and cherish and know the joy that this world has brought to Dan and I. We are truly blessed by each of you and thank you for your help on this journey.