Go Paul Go!
Today we are so thankful. God has given us the joy of having a fairly good cath report! On a scale of 1-10 (1 being the worst news ever and 10 being a miracle) today was about an 8! We found four collaterals one venous collateral and three arterial collaterals. Collateral veins are produced by your body when it thinks it is not getting sufficient circulation from a part of the body. If a part of your body is not returning blood back to the heart from a particular part of the body, your body will grow veins around that area to assist in circulating the blood. Blood is lazy. These are little tributaries that develop to tell the blood “hey, over here is an easier pathway than what has just been assigned to you.” Venous collaterals develop off veins (in Paul’s case- the venous was from the innominate vein to the aortic arch ) and arterial collaterals develop off arteries from what we understand. These cause desaturation, pleural effusion, and fluid retention (sound familiar?) The hope is coiling off these pesky veins will take care of the issues. If not, we have to look at more, rare things but for now we HOPE desperately that this is the answer. The not so good news is that heart function is, in fact, moderately depressed. We knew it was mild- moderate and we also know that this can happen after surgery. Sometimes it recovers on it’s own, sometimes medication is needed, and other times it gets worse. We deeply pray that function returns and that we can lead a “normal” post-Glenn life. Please continue to pray for function to return. We appreciate all of you who stood with us today. I want to especially personally thank Aunt Annie who sat with me the day they decided to do the cath and made life bearable, fellow warrior Aunt Becky who came to be with us today, my sorority sister Jen Bourne whose sweet baby also had (successful) surgery today and she still managed to think of us while here at VCH, sweet heart mama Meg Wohlford who brought me a People Magazine and my favorite luna bars and talked to me about lovely Tyson to pass the time, Suzie Carter who had PF Changs awaiting us upon return from the 3rd floor, and countless others for text messages, facebook notes, and phone calls- we felt totally supported and loved. One final shout out- there is a group of women who have formed an organization called Sisters By Heart. I explain them as a “sorority for HLHS moms. ” The women who I consider my “big sisters by heart” Amy and Stacey have been nothing short of amazing during all of this. There are some moments that have only felt “ok” for me after talking to them.
Thanks for sharing in our story... we will post again soon! I am off to snuggle with my smiling baby boy (yup- 3 hours post cath and he is SMILING). Speaking of smiles...