RSV (aka really stinks virus)
As many of you have read on facebook Paul got a nasty case of RSV. In spite of monthly shots to “prevent it” and in spite of our hyper germ vigilance he still got it! It was awful. He got worse and then seemed to get better and then worse again. By Christmas eve morning we had to go the Emergency Room. I will spare you the details of that visit. I will say we knew Paul was in distress and so did they. We were admitted to the ICU on 16 liters of high pressure oxygen. We stayed in intensive care for 2 nights and went to the acute care floor to wean off oxygen. Paul is currently not back at his baseline but he does seem to be getting better everyday and has no oxygen requirement so we were able to go home. The staff at Vanderbilt are RSV EXPERTS- they were wonderful. Every nurse and doctor and respitory therapist cared so much for Paul and for us. The cardiology team came to see us at least daily. The did, upon our request, do an echo and there were some mixed opinions on it. Some felt the function looked the same as his last echo (mildly depressed) and others thought it looked a little worse. This can happen when a kid is upset and/or viral during an echo and Paul was both so its really hard to say if it was accurate. We are praying it was just the virus and his agitation and that his function is the same if not better. We go back to repeat an echo on January 14th. Dr. Parra came to see us while we were in patient and so did our nurse and fellow- they were all great and just want to take a look at Paul again post virus. Children with RSV should avoid sedation for at least 6 weeks post illness so this postpones our MRI and trip to CHOP until February/March.
In other news, Paul has more teeth- MOLARS. He is eating like a champ and recently knocked the Christmas tree over (no one was hurt). Paul got a lot of wonderful Christmas presents. Most notably, he has a lot of new instruments and noise makers so our house is full of music at all times. We hope you and yours had a very happy holiday season. Thanks for walking this journey with us and for praying for Paul.