long overdue- new heart and best place for updates
I used this blog to chronicle our journey with Paul and I LOVE it. It is tough with two little toddlers to find the time to update (clearly). Facebook's pink4paul page has been an easier way to quickly share information and inspiration. I intend to keep this blog going a few times a year mostly so we have it for our family and any other families out there that decide to read Paul's story in this way.
Where to begin? We waited for a new heart while living in the hospital for a really long time. It seemed like forever but in the world of waiting it was just 6 months. We got the news on April 20th that something terrible had happened- a child had died and those parents made the incredible decision to donate their organs. Paul would get the heart. The organ at the very epicenter of life. I was shocked and (evidently) almost fainted when they shared the news. The doc was stoic, calm and realistic. He told me this may be the most complex transplant they preform this year- things could go wrong. They did- they went wrong- massive bleeding requiring re-exploration, respiratory issues, heart function problems, and months of hard to kick organ rejection. And then... He started thriving. It took some time but he turned the corner and now we are in some level of normalcy which is SO WEIRD and I hesitate to even write it for fear of jinxing us.
Today, a little more than a year after we listed and over half a year since the gift of life- we are here in our beautiful home in a little town outside of Nashville with two awesome kids and a thriving marriage. Paul loves to swing, dance, play, count, read, tell jokes and cuddles everyone all the time. We are so grateful- overly grateful and cautiously optimistic that life will stay stable.
I pray Paul and GG outlive Dan and I. I pray for wellness for normal for health and for a precious family who lost their child and gave us ours.