Living in a new place- status changes
At 5:09pm last night Paul was listed as status 1a on the transplant list. The events of the last 10 days and really 3 months have been a blur for all of us. Paul has been in and out of hospital with plastic bronchitis flare ups 9 times since we returned home from Philadelphia. It started as monthly flare ups and then weekly and then daily. He was discharged Saturday December 6th and on the 8th- his birthday-48 hours later required icu support again. Plastic bronchitis comes in like a lion. He's fine one second and really sick the next.